Advance care planning

Say what medical care you would refuse, before a crisis decides for you.

An advance care directive, living will, advance care plan, medical directive, or health care instruction records what matters to you if you cannot speak for yourself. Different places use different names. The heart of it is the same: your wishes as life comes toward its end.

A female doctor discussing an advance care form with an older person and family member
This is about death. It is also about pain relief, dignity, family conflict, avoiding treatments you would never have wanted, and giving doctors a clear direction when everyone is frightened.

Dementia and brain injury

The elephant in the room is losing capacity before you can speak.

Dementia, stroke, trauma, infection, lack of oxygen, and other neurological illness can leave a person unable to make or update a plan. That is when relatives, attorneys, doctors, hospitals, and care facilities may argue about what the person “would have wanted.”

Read the dementia and neurological injury dilemma page

Start here

How to set one up

Use this site to write your wishes in plain words. Then take the draft to your usual doctor and, where possible, a lawyer or official witness in your home jurisdiction. Many places have government forms that must be used for a binding document.

  1. Write the outcome you would accept. For example: “I would accept hospital treatment if I am likely to return home and recognise my family.”
  2. Name the outcome you would not accept. For example: “I do not want to survive on a breathing machine with severe brain damage.”
  3. Choose a decision-maker. Pick the person who will actually follow your wishes, not the person who will find it easiest emotionally.
  4. Discuss it with your GP or treating specialist. Ask what the treatments mean for your actual illness.
  5. Make it valid locally. Laws differ between countries and even between states. Signing, witnessing, capacity checks, medical power of attorney, and family authority rules vary.
  6. Put it where doctors can find it. Give copies to your decision-maker, GP, hospital, aged-care facility, lawyer, and emergency record such as ANONAMED.

Treatment limits

Questions worth answering before the emergency

These are not commands to tick casually. They are prompts for a serious conversation with your doctor and the person who may speak for you.

Resuscitation

  • Full resuscitation: try every reasonable option, whatever it takes.
  • No attempt to restart my heart or breathing.
  • CPR trial only if the team believes recovery is realistic.
  • About 10 minutes of CPR only, unless there is a clear reversible cause.
  • Up to 3 or 4 defibrillator shocks only, then stop if no useful response.
  • No CPR chest compressions.
  • No defibrillation shocks.

Even full resuscitation cannot guarantee survival or recovery. Longer CPR often means lower chance of meaningful survival and higher risk of brain injury, especially when collapse is unwitnessed or illness is advanced.

Breathing support

  • No breathing tube through the mouth or neck.
  • No artificial airway devices.
  • No CPAP, BiPAP, or high-flow oxygen mask if it only prolongs dying.
  • No breathing machine or ventilator.
  • No intensive care unit.
  • No extra oxygen, unless it is for comfort.

Hospital treatments

  • No dialysis machine to clean my blood.
  • No antibiotics for serious infection.
  • No heart medicines to force the heart to work harder.
  • No adrenaline, epinephrine, or blood-pressure drugs.
  • No insulin, if I am dying and it is not for comfort.
  • No blood transfusions or blood products.

Food, fluid, tests, procedures

  • No drip fluids into a vein.
  • No liquid nutrition into a vein.
  • No feeding tube through the nose, stomach, or abdomen.
  • No investigations, blood tests, scans, or monitoring.
  • No procedures or surgery.
  • Keep me comfortable and allow me to die peacefully.

Difficult choices

Pain, peace, and refusing everything

Some people want every possible treatment. Some want comfort medicines only. Some refuse all medicines for religious, philosophical, or personal reasons. That can be a valid choice, but it should be made with eyes open: refusing all medication can mean refusing pain relief, anxiety relief, breathlessness relief, and sedation for unbearable distress.

A good directive can be direct: “I understand this may shorten my life” or “I understand this may mean more suffering, but this is my wish.” It can also say the opposite: “Do not leave me in pain to preserve a few more days.”

A reflective collage of a life well lived, a path, night sky, photographs, and a person writing

Printable forms

Draft your wishes, then make them legal where you live

These generic forms are useful conversation documents. Your local government forms or lawyer-prepared document may be required for legal force.

Advance care directive notice

I have written advance care wishes. Please contact my decision-maker and usual doctor before non-urgent treatment decisions if I cannot speak for myself.

Find help

Doctor, lawyer, government forms

Most people should start with their GP, then use the official forms or a lawyer to make the document valid locally.

Find a doctor

Find a lawyer

Find the official forms